New! Rare Disease Caregiver Respite Program

The National Organization for Rare Disorders (NORD)'s financial-assistance Respite Program is designed for caregivers (parent, spouse, family member, or significant other) of a child or adult with a documented diagnosis of a rare disorder. The Respite Program provides financial assistance to enable the caregiver...

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Easily Learn More About CRISPR

The LDN thanks the Batten Disease Support and Research Association (BDSRA) for pointing the way to the following information. CRISPR (Clustered Regularly Interspaced Short Palindromic Repeats) is one of the new technologies some researchers are using to explore possible genetic treatment of rare...

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