Calendar of Events

The listing of any event, or information about any event, or external web page(s) on the Lysosomal Disease Network web site does not imply or express any endorsement or guarantee of that event, that event information, or of any information on that external web page.

67th Annual Meeting of the
American Society of Human Genetics

October 17-21, 2017 at the Orange County Convention Center
in Orlando, Florida, USA

The ASHG Annual Meeting is the largest human genetics meeting and exposition in the world. This year’s meeting is expected to attract over 6,500 scientific attendees, plus almost 250 exhibiting companies. The meeting provides a forum for the presentation and discussion of cutting-edge science in all areas of human genetics. ASHG members and leading scientists from around the world are selected to present their research findings at invited, platform, and poster sessions.

The headquarter hotels are: The Hilton Orlando and the Hyatt Regency Orlando. Questions can be sent to ASHG.

5th Glycoproteinoses
International Conference
Hosted and Organized by the ISMRD

November 1-4, 2017 in Rome, Italy

Dr. Alessandra d’Azzo is the primary investigator for this scientific conference to be held in Rome, Italy. Dr. d’Azzo wrote, “Like earlier ISMRD gatherings, the conference will bring together basic scientists and clinicians from around the world to share with patient families and colleagues their latest discoveries in the areas of glycoproteinoses pathophysiology, investigational and pre-clinical therapy development, and clinical trials for these rare disorders.” Explore more information: about the conference venue; to make the hotel reservation; or to register & pay the fees. Children and adults diagnosed with a glycoprotein storage disease are admitted free of charge. Early-bird registration ends August 30, 2017. An outstanding lineup of international physicians and researchers comprise the scientific committee. The organizing committee is also quite impressive. More information will be posted at the conference’s web site as the conference draws closer.

2017 Genetic Rare & Immune Disorders Symposium (GRIDS)

November 5-6, 2017 in Fairfax, Virginia, USA

This symposium is hosted by the Lysosomal and Rare Disorders Research and Treatment Center, Inc. located in Fairfax, Virginia. The theme of the 2017 GRIDS symposium is “Immune system and immune responses to the therapeutics in lysosomal disorders.” This program provides CME credit for physicians, physician assistants, nurses, nurse practitioners and pharmacists. The symposium convenes at Fairfax Marriott at Fair Oaks, 11787 Lee Jackson Memorial Hwy, Fairfax, VA 22033. You can make your hotel reservation by calling (888) 236-2427 and asking for the “GRIDS 2017 room block,” or go
online, enter the requested dates of your stay and the group code GRIGRIA. Please note the hotel reservation cut-off date is October 25th, 2017. For more information about this symposium, download the flyer, or e-mail UyenSa Beese, or phone (703) 489-8644.

WORLDSymposium™ 2018

February 5-9, 2018 in San Diego, California, USA

The 14th Annual WORLDSymposium convenes February 5-9, 2018 at Manchester Grand Hyatt San Diego hotel in San Diego, California. Take advantage of Early Registration rates by registering by January 5, 2018. Early Registration discounts apply until January 5, and regular registration rates take effect beginning January 6, 2018.

The Parseghian Classic

June 22-25, 2018 at Pebble Beach, located on the Monterey Peninsula in California, USA

The Parseghian Classic is a golf fundraiser benefiting Niemann-Pick disease type C research. Four different registration package-deals are being offered. Package rates include a portion which is a tax-deductible charitable donation to the Ara Parseghian endowment at Notre Dame University to support NPC research. The research is carried out at Notre Dame University and at other qualified institutions. Registration fees include lodging for Friday, Saturday and Sunday at The Lodge at Pebble Beach™ and all scheduled activities. Golf is played at Pebble Beach Golf Links® and Spyglass Hill® Golf Course. There is also an optional non-golfer group excursion for an additional $125 per guest. Please e-mail Kim Kirkpatrick or phone her at 574-631-3136 to pre-register.

Enzymes, Coenzymes & Metabolic Pathways
Gordon Research Conference

July 22-27, 2018 in Waterville Valley, New Hampshire, USA

The Chairs of this Conference are Holly R. Ellis & Kay Ahn. Applications for this meeting must be submitted by June 24, 2018. (Registration for this meeting is not the same as application. Before registering for the meeting, you must first apply to attend the Conference, and then be accepted by the Chair of the meeting. Once you have been accepted to the meeting, you may then complete the registration process.) For questions about application status, registration, payments, receipts, refunds, posters or site/travel information, please contact Brenda Figueroa. For questions about the Conference program, please send an email to GRC Program Updates.

15th International Symposium on MPS
and Related Diseases

August 1-4, 2018 in San Diego, California, USA

This symposium is being organized by the International MPS Network. The International MPS Network is the official body of the patient associations representing MPS and MPS societies at a European and global level. Membership in the International MPS Network is only open to the one nationally-recognized MPS Society or relevant patient association for each country globally. Up to two representatives from each accepted MPS Society or relevant patient association may attend the International MPS Network Meetings. There is no membership fee; however, member organizations are responsible for meeting the costs of their representatives’ attendance.

The deadline for submitting an abstract to the 15th International Symposium on MPS and Related Diseases is January 8, 2018 at 11:59 p.m. EST. The early-bird discounted symposium registration deadline is April 21, 2018. There is no charge for adults or children with MPS or related diseases to attend the symposium.

The symposium convenes at the Sheraton San Diego Hotel & Marina, 1380 Harbor Island Drive, San Diego, CA 92101, (619) 291-2900. All hotel reservations must be made by July 9, 2018 in order to receive the discounted group rate.

Bereaved Parents of the USA
2018 National Gathering

August 3-5, 2018, at the Whispering Woods Hotel and Conference Center,
7300 Hacks Cross Road, Olive Branch, Mississippi 38654, USA

Bereaved Parents of the USA (“BPUSA”), a national non-profit organization, will hold their 2018 annual National Gathering in Olive Branch, Mississippi. Memphis International Airport is very close to Olive Branch. The Whispering Woods Hotel and Conference Center‘s toll-free number is 866-851-0393. Keep checking the BPUSA’s National Gathering web page for information updates.

Bereaved Parents of the USA self-describes as “a national non-profit self-help group that offers support, understanding, compassion and hope to bereaved parents, grandparents or siblings struggling to rebuild their lives after the death of their children, grandchildren or siblings.”

“There are no dues or fees to become a member of BPUSA and there are no paid salaries within the organization. All work on both the national and chapter level is done by volunteer bereaved parents with a strong desire to help other families survive the death of their children just as they were helped when their own children died.”


If you would like your event listed here, please send it to the web master.

The listing of any event, or information about any event, or external web page(s) on the Lysosomal Disease Network web site does not imply or express any endorsement or guarantee of that event, that event information, or of any information on that external web page.


Follow us on Twitter: @ldned