Calendar of Events

The listing of any event, or information about any event, or external web page(s) on the Lysosomal Disease Network web site does not imply or express any endorsement or guarantee of that event, that event information, or of any information on that external web page.

National Society of Genetic Counselors
37th Annual Conference

November 14-17, 2018 in Atlanta, Georgia, USA

The NSGC 37th Annual Conference showcases advancements across the breadth of the genetic counseling profession to provide education and build community. Attendees can gain knowledge of clinical and scientific best practices, and insights into emerging research. The conference provides a unique opportunity to engage and network with colleagues and to pursue professional development. The Conference will convene at the Georgia World Congress Center in Atlanta.

Registration, hotel and other travel information is available. Based on availability only, the discounted room rates will be available until Wednesday, October 24 (some of the nearby hotels are already sold out).

5th Conference on Clinical Research
For Rare Diseases (CCRRD)

November 19, 2018 in Rockville, Maryland, USA

The Rare Diseases Clinical Research Network will convene their 5th Conference on Clinical Research for Rare Diseases (CCRRD) for the benefit of new investigators, trainees, junior faculty, and others interested in rare disease research methodology. Conference attendees are encouraged to submit an abstract, which will be reviewed by the planning committee. The abstracts selected by the planning committee will be invited to be displayed as a poster during the conference. Four trainees with the highest-ranked abstracts will be invited to present their work orally during the meeting. The Abstract submission deadline was October 22, 2018.

The 5th CCRRD will take place at the Hilton Rockville Hotel & Executive Meeting Center. Attendees are responsible for making their own hotel and travel arrangements for the meeting. Use the hotel’s group-booking codes (scroll down) when making your hotel reservation.

Attendees must register for the meeting. Registration Deadline: November 12, 2018. Registration is $100 and includes: meals, refreshment breaks, and meeting materials. Travel awards up to $750 are available on a competitive basis for trainees, fellows, and junior faculty. Candidates must register for the meeting, submit an abstract, and submit their current NIH Biosketch before they can be considered for a travel award. All requests for travel awards are judged by a committee from the Rare Diseases Clinical Research Network. Travel Award recipients will be notified by November 5, 2018. The informative CCRRD flyer would look great on the bulletin boards in your research institution!

The Everylife Foundation presents
A Rare Affair 2019

January 6, 2019 in San Francisco, California, USA

Attend A Rare Affair 2019 to join biotech and finance executives and venture capitalists at the annual JP Morgan Healthcare Conference for a spectacular networking and wine-tasting event. Proceeds from A Rare Affair benefit the EveryLife Foundation for Rare Diseases. A Rare Affair is held at Kimpton’s Sir Francis Drake Hotel in Union Square on January 6, 2019 from 6:30 p.m. – 10:00 p.m. Guests will enjoy unique, small-batch wines as well as delicious hors d’oeuvres and the hosted open bar. Individual tickets are on sale for $350.00. On January 1, 2019, tickets will be $400.00. (The EveryLife Foundation is a 501(c)3 public charity. All contributions to the Foundation are tax-deductible to the extent permitted by law.) Sponsorships for guaranteed seating are also available now.

15th Annual WORLDSymposium

February 4-8, 2019 in Orlando, Florida, USA

Registration for the 15th Annual WORLDSymposium is open. The early-bird registration discount ends January 4, 2019. WORLDSymposium™ 2019 will convene at Hyatt Regency Orlando, 9801 International Drive, Orlando, Florida, 32819. A limited block of Hyatt Regency Orlando discounted hotel rooms was available until January 4, 2019 or until the discounted room block filled, whichever occurred first. Additionally, a room block is available at The Rosen Centre (across the street from the Hyatt Regency Orlando) at a special rate of $229. Click here to make your Rosen Centre reservation online, or call the hotel directly at: +1 866 996 6338, being sure to mention the code phrase ‘GRPWorldSymposium.’

Categories for abstracts submitted to WORLDSymposium™ 2019 have expanded. Submissions can be accepted in two Basic Science categories, three Translational Research categories, or two Clinical Applications categories. The deadline for submitting an abstract to WORLDSymposium™ for review by the Program Committee was October 1, 2018. Details on the new abstract categories, as well as the abstract submission process, various deadlines, and guidelines for authors and abstracts are available. Be sure to sign-up for updates about WORLDSymposium™ 2019!

Cystinosis Research Foundation
Day of Hope Family Conference
and Natalie’s Wish Celebration

March 28-30, 2019 in Newport Beach, California, USA

Join the Cystinosis Research Foundation and Natalie’s Wish at the Fashion Island Hotel in Newport Beach, California for its Day of Hope Family Conference and Natalie’s Wish Celebration. Save the date — details are forthcoming, keep checking their web page for updates.

American Society of Gene and Cell Therapy
22nd Annual Meeting

April 29–May 2, 2019 in Washington, D.C., USA

ASGCT’s 22nd Annual Meeting will take place at the Washington Hilton. Abstract submission opened on October 17, 2018, and the Abstract deadline is January 16, 2019. Importantly, there will be no Late Breaking Abstract submission process for the ASGCT 22nd Annual Meeting. Associate Members who are the first and presenting author on an abstract will receive free registration for the ASGCT 22nd Annual Meeting. Please Note: The amount of time required to obtain a VISA has increased tremendously. Abstract submitters will be able to generate invitation letters online after Abstract submission opens, so they can apply for their VISA immediately after submitting an abstract. Attendee registration opens on December 1, 2018 and room reservations in ASGCT’s room block will be released shortly thereafter.

Meritorious Abstract Travel Awards: ASGCT will be offering Meritorious Abstract Travel Awards to Associate Members (students or postdoctoral fellows) who have submitted abstracts and received an average review score of between 1 and 3.5. Submitters must be Associate Members at the time of submitting their abstract to qualify for Travel Awards. There is not a separate application for travel grants. Submitters must sign-up for a travel grant during the abstract submission process.

Poster Production Funding: In 2019, ASGCT will once again pay for poster production for 30 Associate Members. Submitters must be Associate Members at the time of submitting their abstract to qualify for poster production funding. Poster production recipients will be chosen based on abstract review scores and a determination of the ASGCT Abstract Review Committee. Poster production for those selected will be through an online system.

Underrepresented Minority Travel Awards: ASGCT will offer a limited number of Underrepresented Minority Travel Awards for students and postdoctoral fellows submitting abstracts for the meeting. The top candidates for this award, based on average score, will receive a $500 travel award to the 22nd Annual Meeting. Candidate must be a U.S. resident and self-identify as belonging to one of the following groups: African American, Pacific Islander, Hispanic, Native American, Inuit, or Aleut. Candidate must be an Associate Member of ASGCT and the first and presenting author of an abstract being submitted for the 22nd Annual Meeting. After reading their web pages, you may e-mail the ASGCT for more information.

ISMRD — The International Advocate
for Glycoprotein Storage Diseases
6th Glycoproteinoses International Conference

July 25-27, 2019 in Atlanta, Georgia, USA

Details are not yet released for the next ISMRD international gathering, which will be the 6th Glycoproteinoses International Conference. Keep checking their web site for the freshest updates, or e-mail the ISMRD. The ISMRD is an internationally focused not-for-proft organization whose mission is to advocate for families and patients affected by one of the following disorders: alpha-mannosidosis, beta-mannosidosis, aspartylglucosaminuria, fucosidosis, galactosialidosis, sialidosis (mucolipidosis I), mucolipidosis II, II/III, or III alpha/beta, mucolipidosis III gamma, and Schindler disease.


If you would like your event listed here, please send it to the web master.

The listing of any event, or information about any event, or external web page(s) on the Lysosomal Disease Network web site does not imply or express any endorsement or guarantee of that event, that event information, or of any information on that external web page.


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