Sunday, May 21, 2017
Location: Greis Park, 55 Wilbur Street, Lynbrook, NY 11563, USA
5K Race begins at 9:00 a.m.
The Quinn Madeleine Foundation is hosting its third annual Feel The Breeze 5K & Fun Run to benefit the Foundation’s mission to aid in the prevention of, and to support research for the treatment and cure of Niemann-Pick disease type A, and to facilitate memorable experiences for children under age 3 who have been diagnosed with a terminal or life-threatening illness.
The race’s age groups are defined as follows: 12 & Under, 13-17, 18-29, 30-39, 40-49, 50-59, 60-69, and 70+. The 5K Run is on a USATF-certified course — flat and fast! Medals will be awarded to the top male and female finishers, and to the top three male and female finishers in each age bracket. All participants receive a t-shirt. For the Kids’ Fun Run, for children less than age 13 – and their parents – all participants receive a special certificate. The Fun Run uses a half-mile course and begins before the 5K race begins, at 8:15 a.m. Virtual runners can also participate! Early-bird registration discount ends 11:59 p.m. on April 29th. Now is a great time to register!
For the second year, the National Organization for Rare Disorders (NORD) is proud to once again partner with The Hole in the Wall Gang Camp on a rare disease summer family camp in Connecticut! The camp provides a special opportunity for children and families impacted by rare diseases to join together for a weekend of pure fun — free of charge. Camp is open to 25 families who are located in the Northeast USA, and it will take place June 1-4, 2017 in Ashford, Connecticut at 555 Ashford Center Road. For details, and to download the application form, visit NORD. Don’t delay — submit your family’s application NOW.
for the Cure Tay-Sachs Foundation
Saturday, August 12, 2017
Location: Coldwater Country Club, 270 Narrows Road, Coldwater, Michigan 49036, (517) 279-2100